Programs and Resources
Thriving Together: Starring Kids with Sickle Cell Family Program
The Thriving Together program offers opportunities throughout the year for patient families to come together to engage in family-centered activities while providing education and support specific to sickle cell. The program strives to connect families with resources in the community to help meet their needs and achieve personal goals.
Beads of Courage
The Beads of Courage program sponsored by Maureen’s Hope helps pediatric hematology, oncology and cystic fibrosis patients at Upstate Golisano Children’s Hospital to tell their story using colorful beads as symbols of courage that commemorate treatment milestones.
Thriving Onward Transition Program
This program is offered for adolescent and young adult (AYA) patients with sickle cell. Our team members work with AYA patients with a goal to independently manage their sickle cell care through education and skills practice by the time they transition into adulthood. Patients who participate in this program learn about their condition, medications, organizing medical appointments, and how to manage health insurance and privacy information when reaching adulthood.
Hillside Children’s Health Homes
Hillside Care Management services ensure that all aspects of a youth’s care—including medical, behavioral health, social services and more—are properly coordinated to support the health and wellness goals of the child and the family. Care Managers work closely with youth, family members and all providers to provide family-driven, youth-guided planning that adapts to a youth’s changing health needs, and ensures that the youth receives comprehensive, effective care.
The Kara Fund
The Kara Fund is a local organization that supports our program through their mission to provide seriously ill children and their families with goods and services in the hope that these items offer some measure of comfort in their time of distress.
Healthy Neighbors Partnership
The Healthy Neighbors Partnership, was created in 2010, between Upstate Medical University, Syracuse Housing Authority, and the Pioneer Homes Tenant Association. The purpose of this strategic partnership is to foster collaborations in a sustainable effort to leverage resources and services that will improve the health and living conditions of residents of Pioneer Homes.