National media featuring Lola Muñoz raise attention for deadly brain cancer

Lola Muñoz hoped the treatment she received in a clinical trial would help other cancer patients. (photos by Moriah Ratner)
Photographs of a 12-year-old patient of Melanie Comito, MD, accompanied recent stories in the Washington Post and National Geographic magazine. Lola Muñoz lived for 19 months after her diagnosis with a deadly brain cancer called DIPG, diffuse intrinsic pontine glioma.
She died in April.

Upstate pediatric cancer chief Melanie Comito, MD, gives Lola a goodbye hug.
DIPG is a tumor of the nervous system that forms in the glial tissue of the brain and spinal cord. It typically grows rapidly, spreading through the brain stem, making treatment difficult. Surgery is usually not an option because of the precarious location of the tumor. Radiation can shrink the tumor, but it usually grows back within the year.
Comito, chief of pediatric hematology and oncology at Upstate, was one of Lola‘s doctors. For 20 years she has not been able to offer much in the way of treatment for children with this type of brain cancer. She recently attended a medical symposium and felt the excitement in the room as researchers discussed the potential of a new targeted therapy they want to try.
One of the reasons research focuses on DIPG is because of families like the Muñozes, who share their story to raise awareness, Comito says. “She was a very special person,” she says of Lola, “and I think Moriah captured that in her photos.”
(Related story: Teen with DIPG launched H.O.P.E.)

Nurse Kristen Thomas draws Lola‘s blood for tests at Upstate after six weeks of radiation.
