Upstate ALS Research and Treatment Center

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315-464-4243

Upstate's ALS Research and Treatment Center provides evidence-based, multidisciplinary ALS care and services for patients with ALS and related motor neuron diseases in a supportive atmosphere with an emphasis on hope and quality of life.

The clinic team consists of ALS specialized doctors, ALS researchers, nurse, clinic coordinator/social worker, dietician, respiratory therapist, physical therapist, occupational therapist, speech language pathologist, spiritual palliative care, representatives from MDA and ALS association.

Upstate's comprehensive care involves multiple specialties, so patients may receive multiple services at one visit. It is the largest ALS Center in New York outside of New York City, and a referral center for central and western New York State. The Center is located at UHCC and sees patients on a weekly basis.

Upstate Neurological Institute is a multidisciplinary team of experts providing the best in patient care and treatment options—and leading the region in advances for patient care, medical education and research in neuroscience.

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National Recognition

The Center is nationally recognized for its research into possible treatments for ALS, and patients are given the opportunity to participate in a variety of clinical trials.

The Center is one of only a handful of centers that have received certification by both the Muscular Dystrophy Association and the ALS Association. The ALS Clinic at Upstate is part of the ALS Association's national network of Certified Treatment Centers of Excellence in Clinical Care and Research.

ALS Center Research

The Center is nationally recognized for its research into possible treatments for ALS, and patients are given the opportunity to participate in a variety of clinical trials.

Home-Spirometry through Telemedicine in ALS

Home Spirometry

A study measuring the use of home-spirometry compared to hospital-based spirometry for accuracy and efficacy in measuring respiratory decline using telemedicine.

Site PI: Dr. Eufrosina Young
Study Coordinator: Lena Deb (DebL@upstate.edu; 315-464-9756)
ClinicalTrials.gov Identifier: NCT05106569

Currently Recruiting

HEALEY ALS Platform Trial

This is the first ALS platform trial, accelerating the path to new ALS therapies by testing multiple treatments at once, reducing the cost of research by 30%, decreasing the trial time by 50% and increasing patient participation by 67%

Site PI: Dr. E. Young
Study Coordinator: Lena Deb (DebL@upstate.edu; 315-464-9756)
ClinicalTrials.gov Identifier: NCT04297683

Currently Recruiting for Regimen F only

COMBAT-ALS

A phase 2b/3 Multi-center, Randomized, Double-blind, placebo-controlled, 12 month clinical trial to evaluate the efficacy and safety of MN-166 (ibudilast) followed by an open-label extension in subjects with ALS.

A study measuring the safety and efficacy of Ibudilast (MN-166) for use in ALS. This drug has already shown promise in ALS in its phase 2 trial in improving patient’s functional activity, quality of life and muscle strength.

Site PI: Dr. Jenny Meyer
Study Coordinator: Sigiriya Smolen (SmolenS@upstate.edu; 315-464-9767)
ClinicalTrials.gov Identifier: NCT04057898

Currently Recruiting

COURAGE-ALS

A Phase 3, Multi-Center, Double-blind, Randomized, Placebo-Controlled Trial to Evaluate the Efficacy and Safety of Reldesemtiv in Patients with ALS.

Reldesemtiv acts on your muscles to strengthen contraction. Reldesemtiv has been tested in humans extensively and it showed promise in an earlier ALS trial. During the second half of the study, all patients will receive the active drug.

Site PI: Dr. Deborah Bradshaw
Study Coordinator: Sigiriya Smolen (SmolenS@upstate.edu; 315-464-9767)
ClinicalTrials.gov Identifier: NCT04944784

Currently Recruiting

ALS Community Outreach

Voice of PALS Foundation

Grateful Patient Cliff Maus, a retired Canandaigua police officer, opened a new fund for ALS research to spread awareness and support for the care of patients suffering from a devastating disease in our community.

Advocates for Upstate

Thank you to the Advocates for Upstate for their generous funding of the ALS Clinic's Neuro on Wheels grant. This initiative makes safe and specialized transportation of patients to/from their follow up appointments affordable and accessible to all in need.

ALS as a Livable Disease; A Multidisciplinary Approach

Our Team

Eufrosina Young, MD

Director, ALS Center

Provider Profile

ALS Clinic Support Team

Jeffery Collins, RN
Registered Nurse

Stephanie Lessun, LMSW
Coordinator

Our Location

Amyotrophic Lateral Sclerosis (ALS) Research and Treatment Center
Upstate Health Care Center
Google Maps & Directions
4th Floor
90 Presidential Plaza, Syracuse, NY 13202
Phone: 315 464-4243
Fax: 315 464-7328

Hours:

8-4:30

Clinic Details

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