Upstate Active Clinical Trials

Study Title:

The Epidemiology of Diamond Blackfan Anemia: The Diamond Blackfan Anemia Registry

What is the purpose of the study? (in Layman's terms, please describe the study)

Registry study to maintain a comprehensive database of patients with the rare inherited bone marrow failure syndrome Diamond Blackfan anemia (DBA).

Upstate Institutional Review Board (IRB) Number:

254498

Study/Protocol ID:

DBAR

Study Phase:

N/A

Patient Age Group:

Children

Principal Investigator:

Kathryn E Scott

ClinicalTrials.Gov ID:

NCT00106015

For more information about this trial go to ClinicalTrials.Gov

Who can I contact for more information?

Name: Karen B Bilynsky
Phone: 315-464-7601
Email: [email protected]

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