Equity Research Core
The Equity Research Core (ERC) addresses a systemic gap in medical research – the lack of diversity among individuals who participate in clinical trials and other studies. The ERC recognizes that some diseases disproportionately effect African Americans and Latinos, but that related studies may be based largely on middle aged white males. As such, the relevance of this research in developing treatments that are effective across diverse populations is uncertain.
The intent of the ERC is to understand and address potential barriers and strategies to support the recruitment and retention of diverse populations in research. SUNY Upstate Medical University’s ERC creates new mechanisms for directly engaging members of the community in the design of studies that will be attractive and feasible for diverse adults to participate in.
The Community Research Recruitment Accelerator (CRRA) is one arm of the ERC, and is a multi-stakeholder group that works in an ongoing committee structure to advise researchers on effective methods for recruiting and retaining diverse participants in specific studies. This group is made up of diverse lay community members and leaders, researchers, caregivers and a Community Research Liaison (CRL).
The Community Research Liaison is the ERC's other arm. Kathy Royal, works to inform the community on healthcare and research opportunities effecting diverse communities. The CRL is a novel community-research professional role and has deep ties with this community. The CRL is trained in matters of research, and serves as a bridge between the research community and the individuals who research is intended to benefit.
If you are a researcher looking for guidance on recruitment methods (CRRA) or assistance in supporting these methods (CRL) in the community, you have come to the right place and can contact Sarah McNamara for more information.
Research Opportunities For Diverse Individuals
Familiar with black/brown communities of Syracuse, Kathy Royal can help answer questions about participating in research and help to walk you through it. By participating, you can make a big difference in medical care for your community.
'Ask the Expert': Health Disparities Dementia Research.
- Recruitment Accelerator for Diversity in Aging Research
- Brangman and Alzheimer's Association Ask the Expert: Health Disparities and Dementia Research Video
Related Projects Partnerships
- Mount Sinai School of Medicine
- Recruitment Partners
- Cornell University
- Healthy Neighbors Partnership
- Syracuse Community Connections
- Syracuse Housing Authority
Community-Based Participatory Research
The ERC is an example of community-based participatory research (CBPR), which gives community members a voice in the research process, identifies research questions and approaches that are relevant to consumers, addresses health equity, and helps to engage a diverse spectrum of research participants, particularly those who may have traditionally been disenfranchised. SUNY Upstate brings experience in community-engaged research that stems from contracts with the Patient Centered Outcomes Research Institute (PCORI) since 2015, that have engaged patients and caregivers in identifying aging-related research goals and defining outcomes and methods. By this approach, there is assurance that research outcomes are meaningful and the community understands the role of recruitment in being able to answer the questions of shared importance.