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Our multidisciplinary team’s mission is to offer a comprehensive family-centered approach to assessment and care for children and families affected by serious illness, beginning in the prenatal stage of development into early adulthood. Our focus is on enhancing quality of life for our patients as well as their loved ones.

Services Provided by Pediatric Palliative Care

  • Support with medical decision-making by working together to identify each family’s unique goals of care
  • Expertise in pain and symptom management to improve quality of life
  • Support with communication among family members and medical teams
  • Emotional support and medical coping
  • Additional education about medical information and care
  • Coordination of care within the hospital and community
  • Advanced care planning
  • End-of-life care
  • Comfort care

How Pediatric Palliative Care differs from Adult Palliative Care

Many childhood medical conditions are rare and the length of each illness varies. Some children live for a short time, while most continue to receive pediatric palliative care for several months to years. In most cases, children receiving pediatric palliative care continue to receive care from their pediatrician and other medical providers.

Children may still receive cure-directed treatments while receiving pediatric palliative care. For children, medical decisions are typically made by or with family members. As children continue through development despite their illness, they can continue to receive multidisciplinary services to meet their developmental needs.

Candidates for Pediatric Palliative Care

  • Infants and children with complex medical needs
  • Women and their families in need of additional support when a baby receives a diagnosis of a serious congenital condition during pregnancy, such as Trisomy 13 or Trisomy 18
  • Children who require frequent hospitalizations and high levels of care
  • Children impacted by medical trauma
  • Families needing support in preparing for end-of-life, including advanced care planning

Commonly Represented Medical Conditions 

  • Dravet Syndrome
  • Duchenne Muscular Dystrophy
  • Neurological impairment
  • Osteogenesis Imperfecta
  • Gaucher Type 2
  • Seizure disorders
  • Rhett Syndrome
  • Mitochondrial Disease
  • Spinal Muscular Atrophy
  • Tay Sachs
  • Heart Disease
  • Cancer
  • Undiagnosed
  • Chromosomal problems
  • Multiple congenital anomalies
  • Serious congenital heart disease
  • Severe kidney problems
  • Concerns during pregnancy increasing risk for severe premature delivery


This is covered by your insurance company in the same way as any other specialist.