Related Sites of Interest

PLEASE NOTE: Links on this page take you outside of the University Hospital/Upstate Medical University website. The University has no control or responsibility for information posted on external sites. Always confirm genetic information with your local genetic counselor or health care provider.

National Genetic Support Groups

• The Genetic Alliance Resource — www.geneticalliance.org
  Support, education and advocacy
  
  
• Birth Defect Research for Children — www.birthdefects.org
  
  
• NORD — http://www.rarediseases.org
  National Organization of Rare Disorders
  
  
• MUMS — www.netnet.net/mums
  National Parent-to-Parent Network
  
  
• Genetic & Rare Conditions — www.kumc.edu/gec/support/

General Genetic Interest

• Exceptional Family Resources — www.contactefr.org
  Finding support for children with disabilities in Central New York
  
  
• NOAH — www.noah-health.org
  New York Online Access to Health Homepage
  
  
• Family Village — www.familyvillage.wisc.edu
  A Global Community of Disabilities Related Resources
  
  
• Genetics Home Reference — ghr.nlm.nih.gov/ghr/template/Home.vm
  
  Your Guide to Understanding Genetic Disorders —
  ghr.nlm.nih.gov/ghr/page/Home
  
  
• March of Dimes — www.modimes.org
  
  
• Glossary of Genetic Terms — www.genome.gov/glossary.cfm

Professional Genetic Groups

• The National Society of Genetic Counselors — www.nsgc.org
  
  
• The American Society of Human Genetics — http://genetics.faseb.org/genetics/ashg/ashgmenu.htm
  
  
• The International Federation of Human Genetic Societies — www.ifhgs.org