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Resource LinksThere are many organizations that provide information about cleft lip/palate and craniofacial conditions. Here are a few websites you may find helpful to get you started. Lucky Smiles is a local family support group that is partnered with the Cleft Advocate Pathfinder Organization. Their website provides information for families and lists support group meetings and events. The organization's founder and director, Kelly Luckey is a parent of a child born with cleft lip and palate. Ms. Luckey accepts private email and phone calls. The Cleftline website is sponsored by the Cleft Palate Foundation founded by the American Cleft Palate-Craniofacial Association in 1973 to be the public arm of the professional association. They also have a toll free number to provide information about clefting and other craniofacial conditions as well as referrals to local family support groups. FACES provides financial support for non-medical expenses to patients traveling to a craniofacial center for treatment. Eligibility is based on financial and medical need. Resources include newsletters, information about craniofacial conditions, and networking opportunities. The Cleft Advocate provides advice for people who are fighting insurance denials for their medical care. About Face USA provides educational and emotional support to persons born with craniofacial birth and acquired anomalies and their families. MUMS is a national parent to parent organization that is primarily a networking system to match parents who have children with the same or similar conditions. The Smile Train has a cleft information public library with access to full transcripts of numerous articles and studies related to every major cleft issue. |
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