Ostomy Support and Resources

The most important ostomy support you can receive is that of your family and close friends. Don't be afraid to talk with them about your concerns. Be sure also to talk to your healthcare team (doctor and nurses), especially your ostomy nurse. Call at any time if you are experiencing ostomy problems. Before discharge from the hospital, talk with your doctor and ostomy nurse about the need for a home care nurse.

Listed below are other ostomy support and resource options. Click on a each to see the detailed information.

Outpatient Follow-up

  • Schedule a follow-up visit with your ostomy nurse at the same time as your first post-operative visit with your physician.
  • It is recommended that you are seen every 6-8 weeks for the first 6 months after discharge, then yearly to have your stoma re-measured, to keep current with supplies, and be observed for any developing bad habits.
  • Check with your insurance company before your visit to confirm coverage for ostomy outpatient care and to receive proper authorization.

Local Support Groups

  • Crouse Hospital Ostomy Support Group: Meets at 6:30 pm on the second Tuesday of every month. For more information call (315) 470-7300. There is also a newsletter that is mailed out every other month; call to be added to the mailing list.
  • J-pouch Support Group at St. Joseph's Hospital: Meets every 3 months. For more information call (315) 448-5853.

Helpful Groups and Web Sites

Web Sites Oriented Toward Child Ostomy Issues: