Upstate hosts International Conference on Pheo Para
Syracuse will host what is expected to be the largest single gathering of patients who have battled pheochromocytoma and paraganglioma, a rare condition marked by cancerous
Nearly 75 patients from North America are expected to gather with health care providers and researchers—some from as far away as Japan and Australian—June 6 through 8 to participate in the 2019 International Pheo Para Conference, to be held at the CNY Biotech Accelerator on Upstate Medical University campus.
The conference is sponsored by the Pheo Para Alliance, Upstate Urology and the Upstate Cancer Center.
Pheochromocytoma and Paraganglioma, better known as Pheo/Para, are neuroendocrine
“This conference represents an important opportunity for Syracuse, as we attract leading clinicians, researchers and patients from near and far to explore the latest findings on this medical condition,” said Gennady Bratslavsky, MD, professor and chair of Upstate Urology and division chief of Urology Oncology. “By way of Upstate, Syracuse is becoming an important resource and destination for the treatment and management of pheochromocytoma and paraganglioma.”
Bratslavksy will address the conference at 1 p.m. Friday on the Surgical Approaches for Pheochromocytoma and Paraganglioma.
Conference and Grand Rounds keynote speaker will be Karel Pacak, D.Sc., M.D.,
Pacak, a leading researcher in the field, established in 1998 a new Program for Neuroendocrine Tumors focusing on pheochromocytoma and paraganglioma at the Eunice Kennedy Shriver National Institute of Child Health and Human Development. He is a recipient of numerous awards including the Peter Heimann Memorial Award at Yale University, International Association of Endocrine Surgeons; NIH Director's Mentor Award, Award for Cure from Pheo & Para Alliance, NICHD Director's Award of Merit, Pincus Taft Memorial Lecture the Highest Award from Endocrine Society of Australia, and Jessenius Gold Medal from Slovak Academy of Sciences. Pacak is the author of more than 305 scientific peer-reviewed articles, 98 book chapters, and 5 books. He is
A pre-conference Grand Rounds presentation and dinner with
The conference opens Friday, June 7 at the CNY Biotech Accelerator, 841 E. Fayette St. The schedule of presentations, in addition to
“This conference provides an opportunity for the research, physician and patient populations to be together in the same room, discussing the latest advancements in screening, diagnosis, treatment, and support services for those suffering from pheochromocytoma and paraganglioma,” said Matthew Capogreco, program and events coordinator of the Upstate Cancer Center. “This conference will do more than just scratch the surface. We’ve gathered an incredible group of speakers and will have both expert and patient panels. I think attendees will leave this event better informed and with a clearer path moving forward.”
Sessions for Friday, June 7
—Pheochromocytoma and Paraganglioma Diagnostics, presented by Lauren Fishbein, MD, PhD, MTR, Assistant Professor in Medicine, University of Colorado School of Medicine, Division of Endocrinology, Metabolism and Diabetes, Division of Biomedical Informatics and Personalized Medicine
—Genetic Implications for Pheochromocytoma and Paraganglioma, presented by Justin Annes, MD, PhD, Endocrine Oncology Cancer Care Program, Head of Pheochromocytoma / Paraganglioma Program, Assistant Professor of Medicine, Division of Endocrinology, Stanford University
—Pediatric Pheochromocytoma and Paraganglioma, presented by Jonathan Riddell, MD, Assistant Professor of Urology, Upstate Medical University
—Surgical Approaches for Pheochromocytoma and Paraganglioma, presented by Gennady Bratslavsky, MD, Professor and Chair of Urology, Division Chief of Urologic Oncology, Upstate Medical University.
—Non-Surgical Approaches for Pheochromocytoma and Paraganglioma, presented by Joseph Dillon, MB, BCh, BAO, Associate Professor of Endocrinology, Associate Director of the Neuroendocrine Tumor Clinic, University of
—Differences between Paragangliomas and Pheochromocytomas in malignant potential, in 80 Japanese patients, presented by Shoichiro Ohta, MD, PhD, Professor, School of Nursing, Fukushima Medical University, Japan
Sessions for Saturday, June 8
—Pheochromocytoma and Paraganglioma Research: What’s on the Horizon, presented by Roderick Clifton-Bligh, BSC (med) MB BS (
—Wellness For the Pheochromocytoma and Paraganglioma Patient, presented by Kaushal Nanavati, MD, Assistant Professor of Family Medicine, Medical Director of Integrative Therapy, Upstate Medical University
—Navigating the System, presented by Bonnie Bennett, BSN, RN, Nurse Coordinator, Neuroendocrine Tumor Treatment Program, University of Pennsylvania
Patient Stories and Panel Discussion and Caregiver Presentation.
More on Pheo/Para
Common symptoms of
• Heart palpitations
• Racing heart rate, even while resting
• High blood pressure • Excessive sweating
• Attacks similar to panic/anxiety attacks (these may occur in response to exercise or for no apparent reason)
• Chest/abdominal pain
• Muscle weakness
Although the causes of
More details about the conference are available here: www.upstate.edu/pheo
Caption: The CNY Biotech Accelerator will host the International Pheo Para Conference.