Related Websites of Interest
PLEASE NOTE: Links on this page take you outside of the University Hospital/Upstate Medical University website. The University has no control or responsibility for information posted on external sites. Always confirm genetic information with your local genetic counselor or health care provider.
National Genetic Support Groups
- The Genetic Alliance Resource - www.geneticalliance.org
Support, education and advocacy - Birth Defect Research for Children - www.birthdefects.org
- NORD - http://www.rarediseases.org
National Organization of Rare Disorders - MUMS - www.netnet.net/mums
National Parent-to-Parent Network - Genetic & Rare Conditions - www.kumc.edu/gec/support/
- Unique - www.rarechromo.org/html/home.asp
Rare chromosome disorder support group - Huntington's Disease Society of America (HDSA) - www.hdsa.org/
National, voluntary health organization dedicated to improving the lives of people with Huntington's disease - National Down Syndrome Society (NDSS) - www.ndss.org/
National advocate for the value, acceptance and inclusion of people with Down syndrome
General Genetic Interest
- Exceptional Family Resources - www.contactefr.org
Finding support for children with disabilities in Central New York - Gene Tests - www.genetests.org
A publicly funded medical genetics information resource developed for physicians, other healthcare providers and researchers. - Genetics Home Reference - ghr.nlm.nih.gov/ghr/template/Home.vm
Your Guide to Understanding Genetic Disorders -
ghr.nlm.nih.gov/ghr/page/Home - March of Dimes - www.modimes.org
- Glossary of Genetic Terms - www.genome.gov/glossary.cfm
Professional Genetic Groups
- American Board of Medical Genetics - www.abmg.org
- American College of Medical Genetics - www.acmg.net
- The American Society of Human Genetics - www.ashg.org
- The International Federation of Human Genetic Societies - www.ifhgs.org
- The National Society of Genetic Counselors - www.nsgc.org