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H. How Common Is TBI, And Who Is The Typical Person With TBI?

The incidence of TBI is high, but just how high is not known, primarily because many head injuries are not included in official statistics and because definitions of TBI, of disability and of recovery vary across the respective research groups and agencies that track TBI incidence. For example, what clearly affects any of the estimates of TBI incidence is that many people with mild injuries do not gain access to the health care system, because, as was discussed above, many such injuries are labeled incorrectly or are ignored.

These individuals with TBI are not included in hospital-based estimates. Further, many of these individuals -- in unknown numbers -- have all the symptoms of TBI and do not know the cause of their symptoms. Because the problems in living triggered by TBI are not seen by them as being a result of TBI they are not counted in household surveys that ask if "anyone in the household has experienced a TBI".

In a presentation in 1995, Dr. David Thurman of the Centers for Disease Control and Prevention reviewed data regarding incidence and mortality rates due to TBI, covering the past 20 years. Based on current data, he estimates that 250,000 hospitalizations occur yearly, with 70,000 of these occurrences experiencing long-term disability and 60,000 dying. The direct costs of such injuries plus lost earnings Thurman estimates at nearly $40 billion yearly.

Thurman acknowledges that these data are under-estimates, as hospitalization rates have decreased due to more stringent admission criteria in recent years (and, as discussed above, many people with TBI's do not reach the hospital's doors at all). Also, the one-quarter million hospitalizations estimated by Thurman do not include those whose medical contact was in the hospital's emergency room or clinic, or in a physician's office.

Interestingly, the incidence rates have fallen since the 1970's. Then, annual rates hovered around 200 per 100,000. In the early 1990's, the incidence in several studies approximated 100 per 100,000. This precipitous drop Thurman attributes to the changed rates for hospitalization mentioned above and also to a real drop in injuries, based on fewer transportation-related accidents, which now are the cause of half of all TBIs.

Who is the typical person with TBI? Historically, the 'average' brain injury has been depicted as happening to a young male. The ratio of males to females has been estimated to be as high as 4:1; Thurman's data suggest a 2:1 ratio. Although these data well describe people with head injuries who have been hospitalized, recent data based on interviewing people with head injuries living in the community indicate that the ratio of head injured males to females in the non-hospitalized population is closer to 3:2.

This may be the case partly because females are more likely to receive blows to the head (for example, through spousal abuse) that are not viewed as serious enough to send them to the hospital, but the cumulative effects lead eventually to serious consequences in day-to-day functioning.

In looking at the age of those who are injured, Thurman's data suggest that indeed young people are at high risk. Those who are 15 to 24 have an annual rate of TBI of 169 injuries per 100,000. However, those younger than 15 have relatively low annual rates (about 80 per 100,000), while those of retirement age have the second highest rate (124 per 100,000). What these data suggest is that although teenage and young adult males top the list of those most likely to be injured, TBI is more of an "equal opportunity" nemesis than myths would have it.

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