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Spina Bifida Clinic
University Hospital
750 East Adams Street
Phone: 315 464-6395
FAX: 315 464-6398
Spina Bifida is a complex birth defect which may result in paralysis, muscle weakness, hydrocephalus, scoliosis, learning disabilities, abnormalities in bladder and bowel function, and other problems. The Spina Bifida Clinic provides a comprehensive management approach to children and adults with Spina Bifida and similar disabilities residing in 26 counties of central and northern New York.
The Clinic Team includes a Medical Director and a Clinical Nurse Specialist/Clinic Coordinator, and clinicians specializing in:
- Neurosurgery
- Orthopedics
- Urology
- Pediatric Surgery
- Physiatry
- Nursing
- Enterostomal Therapy
- Physical Therapy
- Occupational Therapy
- Genetic Counseling
- Social Work
The Clinic provides:
- Diagnostic and evaluative services
- Telephone consultation for families and professionals
- Patient/family education in Spina Bifida
- Patient/family training in specific areas, such as bladder and bowel management, and skin and wound care
- Genetic counseling
- Limited psychosocial counseling
- Linkage to other clinical and community services
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